Statement on the Clinical Use of Human Germline Genome Editing
Given that According to the canons of research on children, experiments are only ethically justified when there are clear benefits to that individual child and proportional burdens to that child. Risks and burdens beyond truly “minimal” to individual children are not justified to benefit other children. To do so is to treat one child as a means to another child’s ends (i.e., to instrumentalize that child).
Whereas Human germline genome editing is experimentation on embryonic humans who cannot give consent, ...read more
Taking stock: Where are we now?
D. Joy Riley, M.D., M.A.
Taking stock of where one is at the beginning of a new project or a new year is a good idea. Where we are in the entire realm of bioethics is beyond the scope of one blog post, but what follows are some landmarks discernible in January 2016…
Physician-Assisted SuicideOn Sunday, 24 January, John Jay Hooker, Tennessee lawyer, politician, and activist, died. Mr. Hooker had most recently championed “death with dignity” — physician-assisted suicide — in a proposed bill and in the courts. By the time of his death, neither the legislature nor the courts had provided ...read more
We Were There…
As the year 2015 comes to a close, we at The Tennessee Center for Bioethics & Culture look back over a year of involvement in a number of important bioethics issues.
1) We were there when the Tennessee Senate Health and Welfare Committee met in Legislative Plaza Room 12 on 9 June 2015 to hear testimony regarding “Death with Dignity,” otherwise known as Physician-assisted Suicide (P-AS). We heard the testimony of John Jay Hooker and others promoting the bill. The Tennessee Center for Bioethics & Culture stayed after a prominent news anchor and her television crew left the hearing. We stayed so we ...read more
Comments and Questions from Our Inbox
D. Joy Riley, M.D., M.A.
Readers are always welcome to send in questions regarding bioethics issues. This past month, a wide range of thoughtful questions and comments have arrived in our inbox. A few representative ones have been chosen for this newsletter (with no identifiers included, of course).
Read on . . . and remember that you can always contact us here.
1) What exactly are three-parent embryos?Mitochondria are the power packs in our human cells, and reside in the cytoplasm — not in the nucleus. Mitochondrial disease varies widely in its expression, and has a prevalence rate of about 1 in 10,000 (Ricki ...read more
Response to NYT Magazine Journalist Kim Tingley
Sowing the Seeds, commissioned work by Carol Harkness for The Tennessee Center for Bioethics & Culture. View the full-size image here.
D. Joy Riley, M.D., M.A.
In February, The Tennessee Center for Bioethics & Culture made a public comment at an FDA committee hearing. The New York Times Magazine on 27 June published an account of that meeting about three-parent embryos. The author of the article conflates normal human sexual reproduction (i.e., having babies with a chosen partner) with genetic modification. She opines:
What often gets lost in the loaded language of the debate over three-parent babies is the fact that ordinary human reproduction ...read more
