WHO’s in Charge? WHAt’s in Store?
Executive Director
The World Health Organization (WHO), through the governing World Health Assembly (WHA) has proposed changes to the International Health Regulations (IHR) that eliminate human dignity, human rights, and freedoms of persons. The Article by Article Compilation of Proposed Amendments to the International Health Regulations (2005) submitted by States Parties in the context of Decision WHA75(9)2 shows the changes, noted by strikethroughs, underlining, and bold text. A strikethrough deletes existing text, and proposed new text is underlined and in bold font. Many changes are afoot. Only a few are considered here.
One change to Article 1 of the document (see NOTE 1 below) ...read more
Guinea Pigs
Joyce A. Shelton, Ph.D. Professor of Biology Emerita Trinity International University
Successful xenotransplantation, animal donor to human recipient organ transfer, is the holy grail for medical doctors and scientists who study organ transplant. Why? Approximately 107,000 people are awaiting organ transplant in the US. Most will wait up to 2 to 3 years. About 17 people die per day because there are not enough organs available to meet the demand (1). Animal organs that have been genetically engineered to remove tissue molecules that cause transplant rejection would go a long way toward relieving the organ shortage.
A recently proclaimed major transplantation breakthrough attracted widespread ...read more
The Prescription for Flourishing Embodiment in Public Bioethics
A Book Review
C. Ben Mitchell, Ph.D. Distinguished Fellow
American public bioethics does not have a sterling history because it misunderstands its most important subject, the human subject. This is the claim of a brilliant new book by O. Carter Snead, the Director of the de Nicola Center for Ethics and Culture and professor of Political Science at the University of Notre Dame.
In What it Means to be Human: The Case for the Body in Public Bioethics (Harvard, 2020), Snead offers a genealogy of American public bioethics. Public bioethics, as contrasted with clinical bioethics, is the realm of human subjects research where, instead ...read more
A Project for Our Time
D. Joy Riley, M.D., M.A. Executive Director
The responses to the COVID-19 pandemic have been by turns dramatic and disconcerting, and, at times, draconian. I read about Steve Reiter’s deplorable experience and his new project in a BreakPoint commentary in July, and he was kind enough to speak with me by telephone on 24 July.
Steve’s beloved wife, Elizabeth, had diagnoses of lupus and pulmonary hypertension, among other difficulties. She had had a lengthy hospitalization in 2014, but had recovered. Steve attributes her recovery to excellent medical care and the 24/7 presence of her family. She had a Hickman line placed, and Steve ...read more
Human Flourishing in an Age of Gene Editing
A Book Review By R. Henry Williams, M.D., F.A.C.P., M.A. (Ethics) Board Chairman, The Tennessee Center for Bioethics & Culture
Human Flourishing in an Age of Gene Editing Erik Parens and Josephine Johnston, Editors Oxford University Press, 2019
As we now live in a time when our genetic code can be altered, whether for better or worse, how should we think about what is best for ourselves? How can we as a human species and as individuals flourish? These are the questions posed in the new volume, Human Flourishing in an Age of Gene Editing. The essays here are interactive, frequently referencing one another, as the ...read more
Statement on the Clinical Use of Human Germline Genome Editing
Given that According to the canons of research on children, experiments are only ethically justified when there are clear benefits to that individual child and proportional burdens to that child. Risks and burdens beyond truly “minimal” to individual children are not justified to benefit other children. To do so is to treat one child as a means to another child’s ends (i.e., to instrumentalize that child).
Whereas Human germline genome editing is experimentation on embryonic humans who cannot give consent, ...read more
Life Without Us?
By Jane Patton, Guest Columnist
It is not new that some people say that they do not want to bring children into the world. And, as far as the do’s and don’ts of being environmentally responsible, the carbon footprint of a single human being tops the list of avoidable behaviors. One presidential candidate even advocates abortion as a way to combat climate change. So, it may be okay to have one or two children. Any more than that and parents might be called selfish.
But, a growing movement is taking the idea of limiting births to the next level—preventing all births. Who ...read more
A Moratorium on Heritable Human Genome Editing: Illusory or Real?
D. Joy Riley, M.D., M.A. Executive Director
In March, 2019, Nature published a commentary penned by Eric Lander, Françoise Baylis, Feng Zhang, Emmanuelle Charpentier, and Paul Berg, and signed by 13 other notables. The name of the commentary is “Adopt a moratorium on heritable genome editing.” This document requires analysis.
First, some definitions are needed. A moratorium is defined as a “suspension of activity,” or “an authorized period of delay or waiting.” Heritable means “capable of being passed from one generation to the next.” Additionally, clinical can refer to a “scientifically detached” attitude or “the observation and treatment of patients directly.” Each of ...read more
Shift and Puzzle: What do an ape and a donkey have to do with bioethics?
D. Joy Riley, M.D., M.A. Executive Director
In C. S. Lewis’ The Last Battle, Shift is a shrewd, crafty ape, and his neighbor, Puzzle, is a meek, somewhat simple donkey. It has been a long time since Aslan, the all-powerful lion, has been seen in Narnia. Therefore, when Shift spies an old lion skin, he decides to have Puzzle dress up in it and pretend to be Aslan. Shift constantly insists that Puzzle do all the heavy-lifting involved in any of their escapades, but in such a way that Puzzle thinks he is getting the ...read more
How Do We Promote Human Dignity?
D. Joy Riley, M.D., M.A. Executive Director
A week ago, I was privileged to tour portions of a few of the buildings in a complex that had previously been used as a state “Hospital for the Insane” in Michigan. Although a number of the buildings have been repurposed into condos, restaurants, and shops, the two-hour tour was of several spaces that have yet to be restored. The architect of the original hospital and treatment regimen was a psychiatrist named Thomas Kirkbride. I was impressed by his understanding of human dignity, as represented by his work. The story is fascinating . . .
Thomas ...read more
