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23andMe and Drug Development

January 31, 2020 • Posted in Blog

D. Joy Riley, M.D., M.A. Executive Director

More than a decade ago—in a different time and a different place—a neighbor offered me a box of stuff he had bought as part of a lot at some estate sale. He needed to get rid of no small amount of “stuff,” so he gave me that box of tarnished silverware and odds and ends. I took it home and spent a couple of days cleaning it. We were already planning a yard sale, and so I placed the now-cleaned items I did not need from the neighbor’s box in the sale. Imagine his surprise ...read more

Human Flourishing in an Age of Gene Editing

December 2, 2019 • Posted in Blog

 

A Book Review By R. Henry Williams, M.D., F.A.C.P., M.A. (Ethics) Board Chairman, The Tennessee Center for Bioethics & Culture

Human Flourishing in an Age of Gene Editing Erik Parens and Josephine Johnston, Editors Oxford University Press, 2019

 

 

As we now live in a time when our genetic code can be altered, whether for better or worse, how should we think about what is best for ourselves? How can we as a human species and as individuals flourish? These are the questions posed in the new volume, Human Flourishing in an Age of Gene Editing. The essays here are interactive, frequently referencing one another, as the ...read more

Statement on the Clinical Use of Human Germline Genome Editing

November 2, 2019 • Posted in Blog
The Tennessee Center for Bioethics & Culture responds to the Public Call for Evidence for the International Commission* on the Clinical Use of Human Germline Genome Editing

 

Given that According to the canons of research on children, experiments are only ethically justified when there are clear benefits to that individual child and proportional burdens to that child. Risks and burdens beyond truly “minimal” to individual children are not justified to benefit other children. To do so is to treat one child as a means to another child’s ends (i.e., to instrumentalize that child).

 

Whereas Human germline genome editing is experimentation on embryonic humans who cannot give consent, ...read more

A Book for (Y)our Time – A Review

March 28, 2019 • Posted in Blog

D. Joy Riley, M.D., M.A. Executive Director

Reading Siddhartha Mukherjee’s The Gene: An Intimate History (NY, NY: Scribner, 2016; paperback, 2017) is to take a 150+ year print journey with an English-speaking physician and scientist, who is also a renaissance man. Mukherjee, an assistant professor of medicine at Columbia University, won the Pulitzer Prize in 2011 for his non-fiction work, The Emperor of All Maladies: A Biography of Cancer. I have not read that earlier work, but have spent time delving into The Gene.

The Gene: An Intimate History begins with the author’s 2012 trip to Calcutta with his father to visit a ...read more

Biobanking

April 25, 2010 • Posted in Genomic & Genetics Issues

http://www.bioedge.org/index.php/bioethics/bioethics_article/8950/