Statement on the Clinical Use of Human Germline Genome Editing

Blog, Engineering Humans / /
The Tennessee Center for Bioethics & Culture responds to the Public Call for Evidence for the International Commission* on the Clinical Use of Human Germline Genome Editing

 

Given that According to the canons of research on children, experiments are only ethically justified when there are clear benefits to that individual child and proportional burdens to that child. Risks and burdens beyond truly “minimal” to individual children are not justified to benefit other children. To do so is to treat one child as a means to another child’s ends (i.e., to instrumentalize that child).

 

Whereas Human germline genome editing is experimentation on embryonic humans who cannot give consent, ...read more

Statement on the Clinical Use of Human Germline Genome Editing Read More »

Taking stock: Where are we now?

Blog, Emerging Technologies, End of Life, Engineering Humans, Genomic & Genetics Issues, United Kingdom, United States / /

D. Joy Riley, M.D., M.A.

Taking stock of where one is at the beginning of a new project or a new year is a good idea. Where we are in the entire realm of bioethics is beyond the scope of one blog post, but what follows are some landmarks discernible in January 2016…

Physician-Assisted Suicide

On Sunday, 24 January, John Jay Hooker, Tennessee lawyer, politician, and activist, died. Mr. Hooker had most recently championed “death with dignity” — physician-assisted suicide — in a proposed bill and in the courts. By the time of his death, neither the legislature nor the courts had provided ...read more

Taking stock: Where are we now? Read More »

We Were There…

Blog, United States / /

As the year 2015 comes to a close, we at The Tennessee Center for Bioethics & Culture look back over a year of involvement in a number of important bioethics issues.

1) We were there when the Tennessee Senate Health and Welfare Committee met in Legislative Plaza Room 12 on 9 June 2015 to hear testimony regarding “Death with Dignity,” otherwise known as Physician-assisted Suicide (P-AS). We heard the testimony of John Jay Hooker and others promoting the bill. The Tennessee Center for Bioethics & Culture stayed after a prominent news anchor and her television crew left the hearing. We stayed so we ...read more

We Were There… Read More »

Comments and Questions from Our Inbox

Blog, United States / /

D. Joy Riley, M.D., M.A.

Readers are always welcome to send in questions regarding bioethics issues. This past month, a wide range of thoughtful questions and comments have arrived in our inbox. A few representative ones have been chosen for this newsletter (with no identifiers included, of course).

Read on . . . and remember that you can always contact us here.

1) What exactly are three-parent embryos? 

Mitochondria are the power packs in our human cells, and reside in the cytoplasm — not in the nucleus. Mitochondrial disease varies widely in its expression, and has a prevalence rate of about 1 in 10,000 (Ricki ...read more

Comments and Questions from Our Inbox Read More »

Response to NYT Magazine Journalist Kim Tingley

Blog, United States / /

Sowing the Seeds, commissioned work by Carol Harkness for The Tennessee Center for Bioethics & Culture. View the full-size image here.

D. Joy Riley, M.D., M.A.

In February, The Tennessee Center for Bioethics & Culture made a public comment at an FDA committee hearing. The New York Times Magazine on 27 June published an account of that meeting about three-parent embryos. The author of the article conflates normal human sexual reproduction (i.e., having babies with a chosen partner) with genetic modification. She opines:

What often gets lost in the loaded language of the debate over three-parent babies is the fact that ordinary human reproduction ...read more

Response to NYT Magazine Journalist Kim Tingley Read More »

Public Comment before the FDA Cellular, Tissue, and Gene Therapies Advisory Committee, 25 February 2014

Blog, Engineering Humans, Resource Room, United States / /

Good afternoon, Members of the Advisory Committee, Ladies and Gentlemen.

I am Dr. D. Joy Riley, the executive director of The Tennessee Center for Bioethics & Culture, an educational not-for-profit organization headquartered in Nashville, TN, dedicated to promoting human dignity in the face of challenges to what it means to be human, and to informing and equipping people to face the vital bioethics issues of the 21st Century.

I am a physician by training, and hold a graduate degree in bioethics as well. I appreciate the opportunity to speak to you today.  I have no conflicts of interest to report.

It is remarkable ...read more

Public Comment before the FDA Cellular, Tissue, and Gene Therapies Advisory Committee, 25 February 2014 Read More »

The Ovolution of the Three-Parent Embryo

Blog, Born Human, Resource Room / /
By D. Joy Riley, M.D., M.A. Executive Director The Tennessee Center for Bioethics & Culture The United Kingdom presented the rest of the world with Louise Joy Brown in July, 1978, the first test-tube baby.  They convened what became known as the Warnock Committee to advise Parliament regarding the new reproductive technologies:  “what policies and safeguards should be applied, including consideration of the social, ethical, and legal implications of these developments, and to make recommendations.” (Warnock, A Question of Life, 4.)  The Warnock Committee by a slim margin approved a variety of reproductive adventures, including ...read more

The Ovolution of the Three-Parent Embryo Read More »